Leaving for the interior of BC for 2 weeks with Bob on one of his work related trips so I can visit my daughter in Kimberly meant leaving my mom in the hospital where she has spent the last 8 weeks. It meant that as she was being assessed for Extended Care and put “On the List” that there could be changes happening while I was away, that when I returned possibly she will have been moved into a Facility, and will need to brace for that emotional impact.
Mom had gone into the hospital 8 weeks ago because her pulse was racing and erratic and blood pressure was very high (we keep a BP device at her place) so my sister had called the ambulance. They got these under control after a few days and then the plan was to get her back home after she gets her strength back.
She was doing well, moving from the “Hospital” ward down to “Transitions,” a place in the hospital where they prepare you to go home, or to a “Home” if your condition changes. All was proceeding well towards mom returning to her apartment we had just moved her into in March.
Then things began to change.
The last three weeks or so she had been weaving stories about her life, a new thing she had begun to do, all pleasant but we knew them to be fantasies, like being a teacher for two years or planting the whole garden that graced the hospital courtyard we spent the sunny afternoons in. She lately began to say she was hired to look after the hospital floor she was staying on. We would tell her that she’s retired now and doesn’t have to work anymore, but she felt under obligation somehow, and we knew better than try and convince her otherwise. She would come back to “reality” and then chuckle over what she had just fantasied.
Regardless of what narrative she was outlining for herself over the previous weeks she was always cheery, laughed, and could easily be humored. She always went with the flow.
But because of this new fantasy behavior they felt she needed to be reassessed for Complex Care and give up her Assisted Living apartment. We had to agree, so she was put on The List. Because Private Complex care is financially out of reach for her, upwards of $6,000 a month, we would have to wait for an available subsidized bed in a facility- hopefully in our town.
I should clarify that what having subsidized extended care means in Canada is that the government withdraws 80% of ones monthly income, whatever amount that may be, for the Care Facility and its amenities and that you are also bound to accepting the first bed offered – no matter where it is in a 40 kilometer radius. If the found bed is not accepted the elder is put back at the bottom of the wait list and must be re accessed again, the whole procedure taking many weeks to months. But once in a subsidized bed we do have a choice then, but only after two months in the found facility and if one is unhappy with it, to then pick another bed in the desired facility and wait until it comes available.
But that first found bed must be taken to qualify.
While I’m in Kimberley my sister was notified that a 4 bed ward room had been found in our town for mom, and my sister went to see it. Her heart sank when she saw the conditions, and asked if there could at least be a two bed room for her instead, they got back to her a few days later and said they had one.
This was better news and my sister prepared to move mom in, having 48 hours to do this-as per regulation, but sudden behavioral changes that seemed to possess my mom have been nothing short of Jekyll and Hyde. So dark, so fast. Two weeks ago Bob and I visited her the day before our departure and we walked (strolled) around the grounds had some ice cream and left her after a few hours smiling and calm.
And because of this new change in mom we had to forfeit the chosen bed as they have now decided she now needs to be re-evaluated, re-assessed for a placement for Aggressive Residents. I know dementia can progress alarmingly, but this was so sudden. 3 weeks ago she was pleasant, co-operative, and social. Her usual self.
I remain suspect of perhaps medications that were conflicting or wanting to blame the other two women who are fully in Alzheimer condition that shared moms room who were always devious and manipulative and at times aggressive, or even an UTI ( urinary tract infection). I still have a difficult time hearing about and accepting my moms condition.
Thinking that not much would transpire in a 2 week absence, that we would still just be waiting for a bed, turns out I had left town during the most emotionally trying time. My sister keeping me informed via texts and phone calls and shouldering the weight of the turmoil, my brothers helping her where they could, and me fretting on the other end. Mom has now been moved into a private room and will stay in the hospital until they can stabilize her behavior and until another placement can be found.
Bob and I will be home in a few days, and although I have tried to stay focused and enjoy the time with my daughter and all the activities we’ve done, I’ve been mentally preparing myself for a return to a changed parent, and the following stages of a long goodbye~